stuff4sam

Message from Sam’s dad – Sam’s new bike!

Posted by stuff4sam on October 30, 2006

We have received Sam’s bike!

We went to the hospital last week and had the last assessment and it all went perfectly. Sam has excellent stimulation and can now cycle for 30 minutes for almost 3 miles!We are absolutely thrilled. We are actually seeing Sam exercise; his muscles get warm, his heartrate and breathing increase and he absolutely loves it. It is beyond words for us.

We have seen Sam sit and lie down for 15 months and do absolutely no active movement. All that time his muscles have gradually wasted and he has missed all those days of being active. Now Sam is exercising! His little body just feels more alive and we are actually doing something to strengthen him… not see him gradually waste away. It is so wonderful for us all.

We lie Sam down and fit place electrode pads on his hamstrings, quads and gluts and then sit him in a chair where we connect the leads to the computer on the bike. Once Sam’s little legs are strapped in and in the right position we start the program. The computer connects to a remote database where it pulls down settings for Sam’s exercise and then it starts.

His legs move around slowly and has a warm up. At this point the bike is doing most of the work but gradually the stimulation increases and you can see his little muscles contract in sequence and the pedals going around faster and faster until Sam’s muscles are doing most of the work. He sits there, whilst we entertain him, looking as pleased as punch and we show him what he’s doing in the mirror. Even though he is not feeling it, and of course not driving it, he gets great pleasure in seeing his legs move and seeing us all exercise with him!

We are so thankful that we have this opportunity to help Sam. We are doing this every other day and we can now see a future of keeping Sam healthy. A thank you is not enough for what people have done for Sam, but now we can thank you all by showing Sam’s progress and see him grow into a strong healthy boy which he so deserves.

Our best wishes to you all.

Neil, Kazumi and Sam

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